Geoff and Gracie’s fundraiser for Georgie and Dravet Syndrome UK
Our daughter, Georgie Elizabeth Barnes, passed away on 24th November 2017 aged 3 years old. Her sudden and unexpected passing has left a massive hole in our lives, a void that can never be filled.
During Georgie’s time with us, she had many ups but also many downs as her condition not only meant lots of time in hospital, due to seizures, but many other problems effecting her development. It was clear from early on that Georgie wasn’t going to grow as a normal child but that didn’t stop her trying everything, nothing was going to hold her back.
Despite all of this, Georgie always smiled, always fought and captured the hearts of anyone who met her. We are honoured to call Georgie our daughter.
Dravet Syndrome UK were crucial in helping us realise that iving with Dravet Syndrome didn’t have to be a lonely place by connecting us to many families all living the Dravet life. Not only were they a massive help during Georgie’s life, they still as we remain a Dravet family. It’s because of this we are back fundraising in order to help them aid other families, continue to support the Dravet community and continue with research into the condition.
Please give what you can as Gracie (aged 8) and I train and prepare to climb Mt Snowdon on 11th September. This will be one of the biggest physical challenges Gracie has faced and we will keep you updated on her progress via her YouTube channel.
Fundraiser link for Georgie and Dravet UK